My Autoimmune Journey
Real stories. Real support. Real understanding.
Navigating Storms & Code
Welcome, I'm Toni. This is where the real stuff lives.
Some days I code. Some days I can barely lift my head off the pillow. Most days exist somewhere beautifully, frustratingly in between. This space is my ongoing journal—where I share what it's actually like to face autoimmune disease, not from a distance, but from right inside the storm.
Every post here is a piece of my journey: the good days that surprise me, the hard days that humble me, the hope I cling to, and the small hacks that keep both Ken and me moving forward.
Why share all this? Because I remember what it felt like to wonder if anyone out there truly understood. I still need reminders that hope is real, that I'm not broken, that tomorrow might be gentler. If you do too—you belong here.
What You'll Find
- Real stories, no filter. What it's actually like to live with chronic illness—from my body, my heart, my kitchen table.
- The whole truth. Moments of insight and struggle. Small wins and real setbacks. Stubborn hope on the days it's hardest to find.
- Your voice matters here. If my story sparks something in you, or you want to share your own, you're more than welcome. This site grows richer every time someone new joins the conversation.
- This isn't medical advice—it's lived advice. What has gotten me through. What has let me code, laugh, love, and keep fighting, even when fighting means just surviving the day.
Your Autoimmune Journey ✨
Navigate your autoimmune experience with our comprehensive FAQ guide. From the initial confusion to finding solutions, we've organized 100+ questions by the phases you'll likely experience. Each card flips to reveal answers based on real experiences and research.
Real Stories. Real People. Real Hope.
"Some days I feel like I'm 80 years old in a 30-year-old body. But finding this community reminded me I'm not alone in this fight."
"The unpredictability is the hardest part. One day I'm hiking, the next I can't get out of bed. This platform helps me track patterns I never noticed before."
"Brain fog used to make me feel stupid. Now I know it's just another symptom, and I've learned ways to work around it."
Frequently Asked Questions
I started this blog because when I was first diagnosed, I felt incredibly isolated. I was searching for stories that reflected my own reality—the good, the bad, and the complicated. My hope is that by sharing my journey and the health information I've gathered, I can create a space where others feel seen, understood, and less alone.
This blog is for anyone whose life has been touched by autoimmune disease. Whether you are newly diagnosed, a long-time warrior, a caregiver, a friend, or a family member, you are welcome here. It’s for people looking for a blend of personal stories and reliable health information, all shared with empathy and honesty.
No, it is not. While I share a great deal of health information that I've researched and experienced, I am not a medical professional. The content on this blog is for informational and educational purposes only and should not be considered a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
I am committed to providing fresh and valuable content regularly. You can expect a new, in-depth blog post every single week. My goal is to consistently share insights, research, and stories to support you on your journey.
Unlike clinical sites, this blog is grounded in over 30 years of my own lived experience with autoimmune disease. It's where I blend my personal stories and the lessons I've learned with well-researched health information to create a resource that's both informative and deeply empathetic.
Absolutely. The emotional journey is a huge part of living with a chronic condition. You'll find many posts here that explore topics like feeling like a burden, apologizing for your illness, and navigating complex social situations. My goal is to support the whole person, not just the physical symptoms.
The topics for my posts come directly from my own three-decade journey with autoimmune disease and from the most pressing questions I hear from the community. If I've wondered about it or struggled with it, chances are I've written about it. This keeps the content authentic, relevant, and genuinely helpful.